Sorry I’ve been MIA for a little bit, I spent some time on a lake with my family while they were on vacation. Summer is winding down, which I am pretty upset about. I love summer so I’m always sad when it comes to an end, right up until I go apple picking and then submerge myself in baking and fall decorating and Halloween costume planning! I only really hate the idea of summer ending, I think, because fall usually ends up being fun too! However, the past few weeks I have spent a lot of time in the sun and it seems to have helped tremendously. It has done wonders for my mood and I can’t help but notice my skin is looking so much better as well. It’s nerve-racking, though, to look so much better, because I worry that I will have another round of flares and go through this all over again, like so many TSW folks do.
As of now, my hands and wrists are still largely affected but are MUCH less red and also much less itchy! Still some redness and yes, they do itch multiple times a day everyday, but still so much less. My face… dare I say it?… almost looks healed… for the past few days it has literally looked “normal”, save for a few dry spots on my eyelids and chin but its NOTHING compared to the sheer hell I was going through about a month ago. Same goes for my neck. My entire back, pretty much from the bottom of my scalp down to the backs of my knees, is still largely affected and if anything has continued to spread and increase in itchiness. It causes me a lot of stress that it spreads and that it always seems worse. To be honest, I barely look at it (mainly because its on my backside so I have to peer around a mirror to see it anyway); I usually jump out of the shower, towel off, and quickly dress so I don’t have the chance to see or itch at all. It just depresses me so I am kind of avoiding it.. its going to run its course regardless so what good is it to stare in the mirror and dwell on it? Its too difficult to photograph and document so I am just letting it be and I think, mentally, that is good for me and helps me to leave it alone.
I am still avoiding moisturizers, for the most part, except for shea butter 1-2 times a day on my hands and the antibiotic ointment mupirocin from my dermatologist on any sketchy looking areas that are open and prone to infection (mostly just wrist, back of knees, and neck if its opened up from my scratching). Occasionally I put some Aquaphor on my eyelids if they are particularly flaky and I want to go out and look “normal”. Anyway, here are some photos of the past 2 weeks. I’ll be honest, I took only ONE photo while away on vacation and I am proud of it! We were too busy having fun and enjoying each others company that I couldn’t have been bothered to photograph my skin, and I’m glad I didn’t focus on that. We actually didn’t even have WiFi or cable, and it was so amazing and relaxing to feel detached from the world like that. I’ve got to do that more often.
So here goes:
8/15/14 (F): I had a reaction to something this day, and I am 99.9% positive it was a concealer I tried. I’ve only ever tried wearing it one other time, and the same redness occurred and lasted a few days.
I can’t get over how my face looks. If you look back to mid-July at my photos and posts… well it doesn’t look like the same person, that I can say for sure. It makes me happy yet extremely nervous that this might only be temporary… but all I can do is go day by day. We’ll see!
Some things I’ve noticed recently:
- less itching overall (though absolutely still present)
- less redness
- zero swelling
- eyebrow is starting to grow back
- still lots of flaking and “dead” skin that just falls right off. Wheenver I take off my shirt it looks like a blizzard is flurrying from off my body! ha.
- less oozing. I still ooze but it is less and I also bleed quicker, if that makes sense? Before, if I scratched too hard/much, I wouldn’t really bleed- just ooze like crazy. Now I ooze less and bleed sooner, I suppose is how I would word it. I don’t mind this at all and in fact prefer to bleed because it doesn’t last nearly as long since the blood clots and quickly stops. Ooze can just go on for days!
- Sunlight is wonderful. It dries up ooze and closes up open wounds. I feel less itchy when I’m in the sun as well.
- Sleeping patterns are still off, but the atarax helps… sort of.
- It really helps me to “time myself”, that is, when I need to stop itching and I’m in the middle of a fit, I look at a clock and try to sit completely still and focus on my breathing say, for 3 minutes or so. I usually pick a goal time and then try to go from there. Sounds silly, but more often than not it really does help.
That’s all for now. I hope everyone in the TSW community reading this is having a good skin day and healing well!